No it’s not the usual political
wrangle creating the hot air; it’s a
plea for compassion floating over
Parliament House in Canberra,
highlighting the need for the
reimbursement of a lifesaving
therapy for a rare form of cystic
fibrosis.
As parliamentarians sit for the
first time this year, a billboard
affixed to an eight story high hot air
balloon has called on the Federal
Government and the manufacturer
of Kalydeco to agree on a price for
the medicine and “Give The Breath
of Life” to 200 Australians living
with cystic fibrosis caused by a gene
mutation known as G551D.
Cystic Fibrosis Australia ceo
David Jack said, “Kalydeco is the
first medicine to target the genetic
defect that causes cystic fibrosis
and can radically improve the lives
of those affected.”The above article was sent to subscribers in Pharmacy Daily's issue from 11 Feb 14 To see the full newsletter, see the embedded issue below or CLICK HERE to download Pharmacy Daily from 11 Feb 14
THE Senate’s Community Affairs Legislation Committee is holding a two-day inquiry into the Therapeutic Goods and Other Legislation Amendment (Vaping Reforms) Bill 2024, which is currently under discussion in Federal Parliament.
A NEW study from the University of South Australia has discovered that an increased cardio-fitness level will reduce risk of death from any cause by nearly 20%.
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